This site is still under development. Information, features, and some organizational aspects of the data still need further work and will change as we continue building.
Pancreatic Cancer
Pancreatic adenocarcinoma
Support resources include groups, services, and practical help that may be useful for people dealing with this disease.
Support
Website | Public | United States / online
Patient advocacy/testimonial site supportive of Stanislaw Burzynski and antineoplaston therapy. Burzynski Patient Group is a support resource for Patients and families interested in Burzynski Clinic and antineoplaston therapy., available through Website. It is included for practical, educational, emotional, caregiver, survivorship, or community support. Review access type, region, activity level, rules, owner, contact details, and fit for the person?s needs.
Burzynski Patient Group
PlatformWebsite
AccessPublic
ActivityUnknown
LanguageEnglish
RegionUnited States / online
AudiencePatients and families interested in Burzynski Clinic and antineoplaston therapy.
Owner / ModeratorBurzynski Patient Group
ContactUse website contact form; medical questions directed to Burzynski Clinic.
Patient advocacy/testimonial site supportive of Stanislaw Burzynski and antineoplaston therapy.
Notes
Advocacy/testimonial source; distinguish from independent evidence review.
Online message-board support group | Private | United States
Free 15-week password-protected online support group for people with a loved one diagnosed with pancreatic cancer. Cancer Care Pancreatic Cancer Caregiver Support Group is a support resource for Caregivers, available through Online message-board support group. It is included for practical, educational, emotional, caregiver, survivorship, or community support.
CancerCare Pancreatic Cancer Caregiver Support Group
PlatformOnline message-board support group
AccessPrivate
ActivityModerate
LanguageEnglish
RegionUnited States
AudienceCaregivers
Owner / ModeratorCancerCare oncology social workers
CancerCare describes its support groups as a way for cancer patients, loved ones, and bereaved people to connect with others. Its site says the groups are led by oncology social workers and can connect people over the phone, online, and in person. This is a general cancer support resource, so it was linked across the currently active disease records as a broad support option.
Imerman Angels describes itself as providing free one-on-one cancer support and personalized mentoring for cancer fighters, survivors, previvors, and caregivers. Because the service is broad and cancer-type matching is part of the model, it was linked across the currently active disease records as a general peer-support option.
Patient education and survivorship support resource for people who have had, or are considering, the Whipple procedure. Includes presentations, lost-organ anatomy, and resources for post-Whipple issues. Created with support from Henry Ford Health, Sky Foundation, Gilda’s Club Detroit, and Michigan State University medical students according to the project history page.
Life After Whipple Project
PlatformWebsite
AccessPublic
ActivityModerate
LanguageEnglish
RegionGlobal
AudiencePatients and caregivers
Owner / ModeratorGreg Adams / Life After Whipple Project
Patient education and survivorship support resource for people who have had, or are considering, the Whipple procedure. Includes presentations, lost-organ anatomy, and resources for post-Whipple issues.
Notes
Created with support from Henry Ford Health, Sky Foundation, Gilda’s Club Detroit, and Michigan State University medical students according to the project history page.
Online forum | Public | United Kingdom / Global
Discussion forum for people affected by pancreatic cancer, with diagnosis/treatment, general discussion, and new-member sections. Macmillan Pancreatic Cancer Forum is a support resource for Patients and caregivers, available through Online forum. It is included for practical, educational, emotional, caregiver, survivorship, or community support. Review access type, region, activity level, rules, owner, contact details, and fit for the person?s needs.
Discussion forum for people affected by pancreatic cancer, with diagnosis/treatment, general discussion, and new-member sections.
Rules
Community guidelines apply.
Phone / Email matching network | Public | Global
Free one-to-one support connecting pancreatic cancer patients and caregivers with survivors and caregivers who have shared similar journeys. PanCAN Survivor & Caregiver Network is a support resource for Patients and caregivers, available through Phone / Email matching network. It is included for practical, educational, emotional, caregiver, survivorship, or community support.
Free one-to-one support connecting pancreatic cancer patients and caregivers with survivors and caregivers who have shared similar journeys.
Notes
PanCAN Patient Services lists Survivor & Caregiver Network as a support option.
Facebook Group | Public | Global
This group is to support those left behind due to pancreatic cancer. My 61 year old brother died on July 1st, 2024 after being diagnosed in December 2023. He died with dignity and courage but with heartbreak for me. His type (adenocarcinoma) accounts for 90% of all PC and is the 3rd leading in cancer deaths.
This group is to support those left behind due to pancreatic cancer. My 61 year old brother died on July 1st, 2024 after being diagnosed in December 2023. He died with dignity and courage but with heartbreak for me. His type (adenocarcinoma) accounts for 90% of all PC and is the 3rd leading in cancer deaths. There is no cure, no test or marker for this devastating disease and it has no enemies. Many famous people have made significant contributions to our lives and could further their legacy with PC research support: Aretha Franklin, Sally Ride, Ruth Bader Ginsburg, Alex Trebeck, Henry Mancini, Jack Benny, Michael Landon, Karl Lagerfeld, Luciano Pavarotti, Patrick Swayze, Jimmy Carters brother and sister, Shirley Abrahamson, and John Lewis to name a few. We need to honor their deaths and our loved ones with honest, transparent conversations on how to make eradicate this disease.
Rules
1. We're all in this together to create a Welcoming environment. Let's treat everyone with respect. Healthy debates are natural, but kindness is required.
2. Make sure everyone feels safe. Bullying of any kind isn't allowed, and degrading comments about things like race, religion, culture, sexual orientation, gender or identity will not be tolerated.
3. Give more than you take in this group. Self-promotion, spam and irrelevant links aren't allowed.
Reddit | Public | Global
Public Reddit community for pancreatic cancer discussion, support, questions, and resource sharing. Reddit r/pancreaticcancer is a support resource for Patients, caregivers, families, available through Reddit. It is included for practical, educational, emotional, caregiver, survivorship, or community support. Review access type, region, activity level, rules, owner, contact details, and fit for the person?s needs.
Public Reddit community for pancreatic cancer discussion, support, questions, and resource sharing.
Rules
Reddit and subreddit rules apply; verify medical claims with clinicians.
Website / Facebook Group / Virtual meetings | Public | United States / Global
Nationwide pancreatic cancer support group promoted by the Seena Magowitz Foundation, combining virtual meetings with an online Facebook forum. Seena Magowitz Foundation Pancreatic Cancer Support Group is a support resource for Patients, survivors, caregivers, available through Website / Facebook Group / Virtual meetings. It is included for practical, educational, emotional, caregiver, survivorship, or community support.
Seena Magowitz Foundation Pancreatic Cancer Support Group
PlatformWebsite / Facebook Group / Virtual meetings
Nationwide pancreatic cancer support group promoted by the Seena Magowitz Foundation, combining virtual meetings with an online Facebook forum.
Facebook Group | Private | Global
Whipple Warriors is a private patient-support community for patients, survivors, caregivers, and physicians connected to Whipple surgery. It began as the Whipple Surgery Survivor Group founded by Ronda Ayala, R. N. , after her own Whipple procedure for a pancreatic neuroendocrine tumor. The group grew into Whipple Warriors and later found a home with the Neuroendocrine Cancer Awareness Network.
Whipple Warriors is a private patient-support community for patients, survivors, caregivers, and physicians connected to Whipple surgery. It began as the Whipple Surgery Survivor Group founded by Ronda Ayala, R.N., after her own Whipple procedure for a pancreatic neuroendocrine tumor.
The group grew into Whipple Warriors and later found a home with the Neuroendocrine Cancer Awareness Network. Its focus is education, advocacy, and peer support before, during, and after Whipple surgery.
Rules
NO SOLICITATION IS STRICTLY ENFORCED. This includes soliciting for donations of any kind.
SINCE YOU WILL NOT BE RECEIVING MEDICAL SERVICES ON THIS PAGE, THERE IS NO HIPPA REGULATION.
ALTHOUGH THE PAGE IS MARKED PRIVATE BY FACEBOOK STANDARDS, YOU WILL BE SHARING YOUR MEDICAL INFORMATION ON A PUBLIC FORUM BY YOUR CHOICE.
BY REQUESTING TO JOIN THIS PAGE, YOU ARE ACKNOWLEDGING THAT YOU UNDERSTAND ALL THE ABOVE.
Notes
NCAN Whipple Warriors page says Ronda Ayala launched the Whipple Surgery Survivor Group in May 2010; it grew into Whipple Warriors and partnered with NCAN.
