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Personal Health Record

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What a Personal Health Record Means

A Personal Health Record (PHR) is a collection of health information that you keep and manage yourself. It may include details about your allergies, illnesses, surgeries, immunizations, test results, medications, and health habits such as diet and exercise. Unlike medical records maintained by doctors or hospitals, which are called electronic health records (EHRs) or electronic medical records (EMRs), a PHR is controlled by you. It can be kept on paper or in electronic form, often through an app or online tool designed to help you organize and access your health information.

Why a Personal Health Record Can Matter in Cancer Care

In cancer care, having a clear and organized record of your health history can be very helpful. It allows you and your healthcare team to see a full picture of your past illnesses, treatments, and test results. This can support better decision-making about your diagnosis, treatment options, and follow-up care. A PHR can also help you keep track of medications, side effects, and appointments, making it easier to communicate with different providers involved in your care.

What You Might See or Hear About a Personal Health Record

You might hear the term Personal Health Record, Personal History, Personal Medical History, or PHR during medical visits, in your test results, or in treatment plans. Sometimes these terms are used interchangeably, which can be confusing. The important thing is to understand that these terms refer to your own health information and history, not a diagnosis or treatment by themselves. If you see these terms in your medical records or hear them from your care team, it’s a good idea to ask how they apply to your specific situation.

Common Confusions and How to Use This Information

PHRs are not the same as the official medical records kept by your doctors or hospitals. They are your personal copy of health information, which you can update and share as you choose. Sometimes PHRs connect electronically with healthcare providers’ records, but not always. Because the term can appear under different names, it’s important not to jump to conclusions about what it means without asking your healthcare team. Remember, a PHR is a tool to help you manage your health, not a diagnosis or treatment plan.

Questions to Ask Your Care Team

If you come across the term Personal Health Record or similar in your care, you might ask: What information is included in my personal health record? How can I access or update it? Does it connect with my doctor’s records? How can it help me manage my cancer care? Who else can see this information? These questions can help you understand how your health information is being used and how you can be involved in your care.

Reading the Term in Context and Next Steps

When you see Personal Health Record or related terms in your medical documents or hear them from your care team, try to understand them as references to your own health information collection. They are not diagnoses or treatment instructions by themselves. This entry is for education and does not replace medical advice. The best next step is to ask your healthcare providers what the term means in your specific case and how you can use your personal health record to support your care and communication.

Sources

Public source information used for this glossary entry includes: